About 22Q11 Ireland
We provide help and support for individuals and families affected by 22q11.2 deletion/DiGeorge Syndrome/V.C.F.S. Through education, research, outreach and advocacy we seek to raise awareness of this little known condition.
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Description
Did you know 22q11 Deletion Syndrome is the 2nd most common syndrome after Down Syndrome? Did you know there are an estimated 25 babies a year born in Ireland with 22q 11.2 deletion syndrome? Did you know it has over 185 different symptoms and can effect every organ system in the body? Did you know many children are misdiagnosed, or not diagnosed until they are adults? Neither did we until it was our children! Help us to raise awareness. Early intervention is key.
